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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: 5 days ago | Replies (663)Comment receiving replies
That is excellent information; thank you so much! It's very helpful. I will definitely reach back out for possible recommendations in the future. I have had Sjorgens for years but haven't dealt with its effects as severely as I have in recent years. It's been a journey and not a fun one! This is my first time really using this platform, and I'm so glad I did. I love reading through past posts/replies. I haven't ever met or spoken to anyone with Sjorgens before, it's very uplifting in a way.
Replies to "That is excellent information; thank you so much! It's very helpful. I will definitely reach back..."
My daughter and I both have Sjogren’s and she was just diagnosed at age 29. We are on Plaquenil and much of the symptomatic relief as listed above including nasal sprays, mouth care, Epicerum for skin care and Cequa and Miebo eye drops. A great resource is the Sjogren’s Foundation. Lots of info, virtual programs and experts
Here is an upcoming virtual session for members:
“The Sjögren's Foundation invites you to a virtual
Members-only Annual Update via Zoom on Wednesday, December 11 at 4:00pm EST.”
You may want to check them out. Early intervention and care helps. Sending you the very best wishes for improved health.
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@hannahbernard1 definitely look thru some of the other listings Sjogren’s mentioned in other places and your other symptoms