← Return to Sjogren’s Syndrome – Introduce yourself and meet others

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@sbtheplumber1

@hannahbernard1 I use a gel I buy at Walmart for the nose called Ayr I use a q-tip to apply it in the nose. My rheumatologist has me on Pilocarpine for the Sjogren’s you definitely have to drink enough when you take it or you will start sweating( I had to go work at a factory when Covid hit and I just started the pilocarpine they were doing temperature checks and I had just taken the pill of course my temperature was high 15 minutes later I was good) . I also tried Cevelimine and the sweating was 3 times worse so I’m back on the pilocarpine. I have to also use nasel sprays. I keep gum in my mouth to keep my mouth moist which is bad for me I tend to not drink enough. Heartburn specialist said if I have that stomach surgery no caffeine which I only drink a pop if I go to a restaurant I’ve had to many kidney stones and I can’t drink plain water so I use the mio and crystal light flavors . I hope some of this helps guide you if you have any other questions reach out to me maybe we will both learn something now for me to research some of the other issues you have and see if their causing me problems. I just love this sight it is so helpful and get to meet a lot of knowledgeable people that cares

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Replies to "@hannahbernard1 I use a gel I buy at Walmart for the nose called Ayr I use..."

That is excellent information; thank you so much! It's very helpful. I will definitely reach back out for possible recommendations in the future. I have had Sjorgens for years but haven't dealt with its effects as severely as I have in recent years. It's been a journey and not a fun one! This is my first time really using this platform, and I'm so glad I did. I love reading through past posts/replies. I haven't ever met or spoken to anyone with Sjorgens before, it's very uplifting in a way.