Connect
← Return to Rapid Reoccurance and Short Doubling Time after RARP
Discussion
Rapid Reoccurance and Short Doubling Time after RARP
Prostate Cancer | Last Active: 1 hour ago | Replies (16)Comment receiving replies
Steve: I am in the exact same boat. Gleason 4+5, doubling time 60 days, I had to do my research to discover the things that you have described. PSA is probably around one by this point and just had the PSMAPET scan and nothing showed up. I now am to wait three months before my next PET scan. I was not aware of the impact on ADT therapy until you just advised. Although the prognosis is statistically, dim, things are changing in terms of early detection that probably didn’t exist when those studies were performed. Let’s keep the faith brother!
Replies to "Steve: I am in the exact same boat. Gleason 4+5, doubling time 60 days, I had..."
Cooper, one thing you might look at are alternative PET scans. < 10% of prostate cancers return false negatives. At 1.0, the PSMA PET scan should be picking things up. You might be one of the guys where your METS are being missed. John- Hopkins developed the PSMA PET scan and developed alternative to those cases. Check out this link, you may find it helpful.
https://www.hopkinsmedicine.org/news/articles/2022/11/finding-metastatic-prostate-cancer-that-doesnt-make-psma
Connect
Cooper, it is good to hear from you. I'm sure you have dealt with all the, "my dad and prostate cancer 20 years ago and he's still around, so don't worry" types of comments. I have read just about every study & trial, read all about each 1st & 2nd generation ADT drug, radiation, etc. While it makes me informed, it really changes little. You and I are in a VERY small group and clearly, there is a very high probability that our mortality is in the balance. ADT and even chemotherapy will most likely work for only a short time, and sometimes not at all. I think we have two chances at 5 years, a miracle or if we live long enough, some fantastic new treatment opportunity becomes available. You stay strong and I'll pray for you!