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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: 2 hours ago | Replies (641)Comment receiving replies
@hannahbernard1 I was on nexium for years, tried Prilosec, been on Omeprazole in the morning for a couple years and now also take pantroprazole in the evening . Sad part I tore the tissue on my eye the week of my 40th birthday and 2 years later my wife turned 40 and was wrestling my son and his toenail went across the same eye as mine , the eye doctor said that was a first having husband and wife with the same issue. I’m dealing with a failed back surgery and spent 4 months sleeping in a recliner since I went to Mayo Clinic I had to find someway to sleep so I was able to sleep on an air mattress which makes it hard to elevate my head.
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Oh wow, best wishes to you while you heal. I am so sorry to hear of your troubles!
So far, I have only used Prilosec as a long-term medication for Sjorgens but have tested steroids in the past, but that is not something I am interested in taking full-time quite yet. If in the future I have no other options, then I will, but as of now, the gain is not worth the side effects. I am planning to try Prilosec again in the near future; I am just waiting for my next rheumatology appt. to bring this up with my doctor. I was very recently diagnosed with burning mouth syndrome. I'm curious if you have done anything to help with dry mouth. I have tried a lubricant spray, sour candy, and mouthwash, but I still have some trouble with dryness. I seem to get frequent bloody noses because of how dry my mouth/nose is.