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← Return to Precursor symptoms to PMR?
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@dadcue that is awful, both to have TN and to also have the crazy push back from neuro. You would think they would have more issue with requests for pain meds! Glad the surgery helped. I wonder if you will develop any other warning signs now that you no longer have bouts of TN. Another of my 'warning signs' that I completely disregarded was fatigue/depression/insomnia. I put that down to my personal life circumstances, but now that I've been on prednisone for a month I have more energy and motivation and interest in things, and sleep for consecutive hours at night. Interesting how inflammation manifests.
Replies to "@dadcue that is awful, both to have TN and to also have the crazy push back..."
Hello Stick
I had no idea the jaw pain and electrical taps to the face were a precursor to a flare of PMR.
My PMR started 15 years ago with debilitating pain to my pelvic bones, shoulder and arms. I was prescribed 20 mg to start and told to start weaning down 1 mg. every month. It took about 5 years to get off the meds.
I have had at least 3 flare ups since then, and I am dealing with one now. I am on 8 mg. and the Dr. mentioned when I get down to 5mg., if I am still hurting he is going to try me on Kevzara. I have read the side effects and I am troubled by what they are.
Do you have any info on this med?
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"Now that I've been on prednisone for a month I have more energy and motivation and interest in things, and sleep for consecutive hours at night."
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This feeling is only temporary. Over time the opposite happens. Don't be deceived by the initial effects of prednisone. Euphoria is one of the common early side effects of prednisone but it typically doesn't last more than a few months at the initial dose. After that, people tend to need more prednisone for the same effect.
https://www.mayoclinicproceedings.org/article/S0025-6196(11)61160-9/fulltext
The medical meaning of euphoria is a "false sense of well being." I don't think people who are doing well need to take Prednisone. However, Prednisone works well for PMR. I just wish people didn't have to take prednisone for years after PMR is diagnosed.
Most medical professionals will "encourage" you to get off Prednisone as soon as possible.