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Prescribed Tymlos after Evenity
Osteoporosis & Bone Health | Last Active: 22 minutes ago | Replies (36)Comment receiving replies
Hello @hollygs . Thank you so much for your kindness and reply. Yes, I am in a very tough situation. Never expected nothing like this. I been working with pain specialist and he tried a few things which all failed and made me worse. My pain is none stop and all my medical team don’t offer anything but Tramadol and now Norco ( I didn’t take this yet). But Tramadol doesn’t work anymore. I never took anything like this before and it makes my stomach very upset. My hands are shaking and I really don’t know where this all is going. My endocrinologist told me that I can start Tymlos right after finishing Evenity. I was looking for information everywhere and not much studies done. The most doctors offering the opposite. Tymlos and then Evenity. I been searching if anyone in this group has any experience with this kind of sequence. Thanks God you wrote to me. My -5.1 T score is very scary. Please tell me how soon you started Tymlos after Evenity and what was the outcome. It is very hard to live with this pain. I was very active and outgoing and for the past 7 months I stopped going anywhere except doctor’s appointments and this is very sad and depressing. Thanks again for any advice and input.
Replies to "Hello @hollygs . Thank you so much for your kindness and reply. Yes, I am in..."
@sunny65 It sounds like you've been very proactive about your care, and that's wonderful! I was put on Fosamax after Evenity by a new-to-me endo, but I had been told by my previous metabolic bone specialist that he would put me on Tymlos after Evenity. I switched back to him and started Tymlos 6 months after stopping Evenity. This delay was because it took a while to see the doctor and then to have Tymlos approved by my insurance. I responded well to Evenity and my T score went from - 4.5 to - 3.2. I won't know anything about how the Tymlos worked until my next DTX, and even then everything is relative and long-term improvement is the goal. I have read that the usual interval after Evenity is 4 weeks, but I have not heard that from a medical proessional so am not sure. Your labs and a new DTX will inform your doctor about your response to Evenity. You are correct, there is very little information available about the use of Tymlos after Evenity. As I previously mentioned on this thread, I contacted the manufacturers of both drugs and was told that currently there are no studies available about the Evenity >>Tymlos sequence. I will say that at a certain point, I was extremely stressed out about all of this. I had a painful spinal fracture, multiple rib fractures, bone marrow edema and fractures in one foot and other conditions. I could barely get around and yet I was going from doctor to doctor to labs, radiology, PT, OT and so
on. Finally, one day I paused and realized that the stress was making me worse. I could barely function, I was exhausted and I couldn't do all of this. I decided to eliminate stress, and relax as much as possible. I took a break from all the medical stuff except getting the Evenity once a month, listened to music, meditated and focused on positive things and eventually I was calm, not overwhelmed and better able to proceed with my life. I hope you will gift yourself compassion and kindness. You're handling an awful lot, and you've been very strong. You don't need to carry it all the time.
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According to my doctor, 6-8 weeks wait after Evenity for another drug.
And I was told I could stop Evenity early since it is not anabolic the whole time.
I hope you can discuss with your doctor!