I’m so glad you posted and are part of this forum. There are many here who have endured this frustration of longstanding illness without a diagnosis. I am one. I can give you some perspective that I hope will help. With your ANA that high, I would look at all the symptoms and signs that go with lupus and see how many you have had in succession, not necessarily all at once. I would review all your abnormal lab results to be included. Look specifically at RA, CCP , DS DNA , RNP, SSA, SSB, SCL
Your Avise test will show all of these plus others. These give important clues.
Many Drs expect textbook cases and that rarely happens in autoimmune diseases. It’s also possible to have more than one. One is usually predominant, others secondary.
Treatment is often similar but psychologically I know it helps to have a name for what the monster is. A diagnosis can be a relief and make treatment more specific. Prior to diagnosis, many call it their autoimmune disease. It’s ok to ask your doctor to take his/her best guess. No harm done. As long as Dr is willing to believe you, treat you, help you. If not, find another. I too am one that seems unresponsive to most medication except prednisone, methotrexate and Placquenil. I had to stop placquenil 3 years ago.
Be a researcher, advocate for yourself, ask for what you need assertively. Don’t just accept suffering as the status quo. You may not feel great but I believe you can feel better. We support you! Keep us posted please.