Anyone experience bad joint/muscle pain post thyroid removal?

My soreness was after my partial thyroid removal.

I can relate to the issue with the side effects! I will mention that when I tried Tirosint I had an extreme reaction….I thought I was having a stroke! I was told to stop it immediately and within a few days I felt much better. Considering how long it takes for the medication to get into my system, the immediate improvement after stopping it made me think I had an intolerance to their formula. When I changed Endocrinologists, the doctor wanted to try Tirosint again and attributed my issue with the pill form; he stated, “You did not try the liquid version.” I tried the liquid version and shortly after starting I started having the bad reactions again and once again I had to stop taking it and immediately felt better. When I was researching Tirosint, I noticed several posts about needing a much lower dose due to it’s lack of fillers and my dose had been the same as my Synthroid so maybe that was why the reaction was so severe.
I take one medicine so any side effects would be related to whatever I am currently prescribed. As of now, the 50mcg of Levoxyl 5 days a week seems to have the least of the negative side effects. I just started splitting the days off from medication, to see if this helps. I have an appointment to go over my results next week so I will see if I can reduce it further or if I need to go to 6 days a week. One of the odd things with my side effects is that I seem to have more symptoms of Hyperthyroidism, yet I have Hypothyroidism. Since I have 1/2 of my thyroid my hope is that it will pick up the slack and I can manage with the lowest dose possible to minimize side effects.
If you are taking several medications, maybe the issue isn’t the changes in the thyroid medication but a change in one of your medications….maybe they changed what they use for filler. There is a compatibility site on the internet where you can put in your medications to see if they are compatible. The side effects associated with some very common medications could be playing off each other. I recently had a meal with Soy Beans and then felt extreme weakness and tiredness ….I had forgotten about the impact of Soy on thyroid. So many variables when you have an issue with side effects!
Since you took your medications for a long time without issues, I would tend to think it might be a change in the formula that caused the issues for you. I have a long history of side effects with medications, as did my father and Grandmother, so I tend to think it’s related to my history. On a good note, it motivates me to use old fashioned remedies for common ailments! Good luck!

Thank you!
I am trying different meds and combos. I have been working with a functional medicine Dr. but have an appt. with an endocrinologist in late January. I worry he won’t have answers for me.
Years ago I had to stop drinking coffee because I started to have a bad reaction. I switched to tea. After about 2 years I had reactions to it. Then I switched to a different tea and again in about 2 years had reactions, I only occasionally have them now and I am not bothered.
So the extreme reaction to the thyroid meds and to any kind of serotonin boosting antidepressant all fit the pattern. As I look back at my 30 years on thyroid meds I have realized that my bloodwork said I was good but I’ve always had the hypothyroid symptoms, can’t lose weight, depression, low energy and brain fog. I’ve really never had relief. So it makes me wonder if my cells have used the meds and now they are rejecting them ☹️
I will be interested to know how your medicine adventure precedes!

2019 I had a Thyroidectomy d/t Graves Disease. Afterwards I kept breaking out in hives and feeling horrible for years. The brain fog, muscle/joint pain, nausea, anxiety, along with my bodies inability to stabilize my TSH levels, was making me lose my mind. I was sent to Immunologist without any answers, just more meds. I finally went back to my Endocrinologist and she realized I was allergic to the binders in the pill form of levothyroxine. Things have improved since starting me on Tirosint but I still am having trouble with random hives, my ears still turn bright red/hot feeling, and muscle pain. It’s worse at night in bed and I struggle turning side to side without pain that feels like I have worked out for 10 hours straight. The severity does come and go. It’s so weird. I feel like I can’t take anything without waking up with hives or having a reaction. It’s so hard to pinpoint triggers. At one point through all this I just wanted to be done because the doctors were horrible. I lost myself and who I was in the depression of it all until my endocrinologist gave me hope and listened to me. I wish I could find answers as well. She recommended me to go to the Mayo Clinic but I am tired of let downs and no answers.

Go to Mayo!! I think you’ll be very glad you did…

I have had some back pain since they took me off armor thyroid. My throat gets sore in the area of my remaining half thyroid and I do sleep a lot. Something is off here.

@tmckinney5, having unresolved medical issues is so tiring. I can understand your despondency and am so glad that your endocrinologist gave you hope.

If you would like to get a second opinion at Mayo Clinic, your physician can make the referral or you can self refer. Here's where to get started: http://mayocl.in/1mtmR63

I only had 1/2 a thyroid removed too. Then it made my hypothyroid so I've been on levothyroxine for 30 years. It worked right away and I didn't have joint pain. So I was about 32 years old when I got 1/2 removed.