Anyone experience bad joint/muscle pain post thyroid removal?

Posted by gillsden @gillsden, Nov 11 6:43am

Hi - This may be a strange question, but I had half of my thyroid removed two and a half months ago. Lab work showed that the other half is not doing it's part as far as hormones and I have started Synthroid. I understand that it could take some time to reach a therapeutic level. I am wondering if it is possible for hypothyroid symptoms to get worse while waiting for the replacement hormone to work. The pain in my joints and muscles are severe enough to impact my day. Before I contacted my physician I wanted to touch base with everyone here because you have been so helpful in the past.
Thank you!

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@mlaw4142

I’m having similar problems. Sensitivities and strong negative side effects to all the thyroid medications. Been hypo for over 30 years, sensitivity is new.
Have you resolved it yet?

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My soreness was after my partial thyroid removal.

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@mlaw4142

Tirosint has no fillers. It is the only really clean thyroid medicine that I know of. Having medication compounded is another option . That also puts you in control of the fillers. You may need your Dr. to write a letter why you need Tirosint to get it covered.

I’ve tried every thyroid medication and tried all kinds of ways to take it, split doses, nights skip days, very low dose, and I get negative reactions. (Even Tirosint)
Currently my side effects are: extreme heat intolerance, sweating, extreme irritability and heart palpitations even using metoprolol. I feel better when I don’t take any meds but blood shows I am hypothyroid without meds.
I’ve searched and searched for anything written about this and only found one case study.
I am hypersensitive to most depression medications as well. They cause me to tremble within 8 hours of ingestion even just one pill.
I’m hoping to find someone out there that has this too and hopefully resolved it.

This is new. I had been able to take the meds for many years but I can’t say I ever felt my body was using the medicine. I had all the classic hypo symptoms and while my bloodwork looked good I can’t say that I felt well.

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I can relate to the issue with the side effects! I will mention that when I tried Tirosint I had an extreme reaction….I thought I was having a stroke! I was told to stop it immediately and within a few days I felt much better. Considering how long it takes for the medication to get into my system, the immediate improvement after stopping it made me think I had an intolerance to their formula. When I changed Endocrinologists, the doctor wanted to try Tirosint again and attributed my issue with the pill form; he stated, “You did not try the liquid version.” I tried the liquid version and shortly after starting I started having the bad reactions again and once again I had to stop taking it and immediately felt better. When I was researching Tirosint, I noticed several posts about needing a much lower dose due to it’s lack of fillers and my dose had been the same as my Synthroid so maybe that was why the reaction was so severe.
I take one medicine so any side effects would be related to whatever I am currently prescribed. As of now, the 50mcg of Levoxyl 5 days a week seems to have the least of the negative side effects. I just started splitting the days off from medication, to see if this helps. I have an appointment to go over my results next week so I will see if I can reduce it further or if I need to go to 6 days a week. One of the odd things with my side effects is that I seem to have more symptoms of Hyperthyroidism, yet I have Hypothyroidism. Since I have 1/2 of my thyroid my hope is that it will pick up the slack and I can manage with the lowest dose possible to minimize side effects.
If you are taking several medications, maybe the issue isn’t the changes in the thyroid medication but a change in one of your medications….maybe they changed what they use for filler. There is a compatibility site on the internet where you can put in your medications to see if they are compatible. The side effects associated with some very common medications could be playing off each other. I recently had a meal with Soy Beans and then felt extreme weakness and tiredness ….I had forgotten about the impact of Soy on thyroid. So many variables when you have an issue with side effects!
Since you took your medications for a long time without issues, I would tend to think it might be a change in the formula that caused the issues for you. I have a long history of side effects with medications, as did my father and Grandmother, so I tend to think it’s related to my history. On a good note, it motivates me to use old fashioned remedies for common ailments! Good luck!

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