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Brain Demyelinating diseases OTHER than MS

Brain & Nervous System | Last Active: Dec 19, 2024 | Replies (26)

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@red79

Hi delia74 they showed my brain and white matter on MRI scan.neurolgist I'm dyslexic excuse my spellings.they want to put electric shock in my head.hope your keeping well

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Replies to "Hi delia74 they showed my brain and white matter on MRI scan.neurolgist I'm dyslexic excuse my..."

What reason(s) were you offered for justifying having electric shock applied to your head? I honestly have never read of that being done due to finding white matter on MRI. It's my understanding that everyone has white matter., as it makes up half the human brain. Plays a critical role in helping body process information. My neurologist is concerned that I have had a great deal of my white matter affected by demyelination, resulting in copious lesions. This has happened over a period of about 11 years, creating many challenges for me, including serious balance issues, very unsteady gait, effects on my central nervous system which then in turn affects how my body functions. I'm 76 and my neurologist was upset that prior medical group 's neurologists were so lax in determining what was happening to my body, my brain specifically. He wanted to start me on Ocrevus (infusion therapy) but is hesitant to do so due to my age, degree of demyelination, and the serious side effects of that infusion therapy. I decided that I do NOT want it. I have given it a great deal f thought. It's a very personal decision.
Please let me know what you doctor proposes to do and what YOU wish to do.
Did you ever receive help with your dyslexia as a child? Our only granddaughter (almost 10 yrs old) was diagnosed within this current year. She is receiving services via her school district and via tutors hired by her parents. As a high school teacher, I had several students who were not diagnosed and struggled. They managed to compensate in their own ways and did fairly well, with a few receiving services in high school, and one went to a college in Vermont that had programs geared to students with special needs. She graduated successfully, and when I ran into her here in our town, she excitedly told me that she graduated with a degree in social work and was employed as such with an agency in our county, working with teens. I was overjoyed to learn this great news!

Let me know about the white matter question that I asked about. Have a restful, peaceful, and loving holidays with family and friends.💖😊