@marilyncarkner I’m glad you asked! I don’t think anyone in this group has gotten the point of long-term treatment. I think it will be IV rituxan infusions twice a year. I’ve had 1 infusion and am doing great on it and 1mg prednisone and 760 mg of mycophenelate ( acts similar to prednisone but without the serious side effects. I hope to be off prednisone by end of December. So, if I can do well on Mycophenolate and rituxan, I’ll be happy and consider myself in remission.

The only thing case studies have done to treat is predisone then when weaned off, symptoms come back so usually have stay on low dose. Then long term ms medications they use since this also tends to mimic ms with the leg weakness. Other than that it is all unknown