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Any of you with PMR also have afib and on blood thinners?
Polymyalgia Rheumatica (PMR) | Last Active: 8 minutes ago | Replies (11)Comment receiving replies
You do blame so many things on prednisone, and in your case, that may be true. In my case, I had a history of DVT before PMR, so that (and latent TB) were listed as higher risks on my medical record when I started prednisone.
I've been on warfarin before, a long time ago. I expect I'll need to stay on Apixaban for at least 12 months as it has a higher risk of rebound clotting when it is stopped than Warfarin did. That consideration and risk doesn't have anything to do with prednisone. I'll continue to discuss all my health risks and how they may be best mitigated regularly with my doctor.
Replies to "You do blame so many things on prednisone, and in your case, that may be true...."
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I don't really blame prednisone for anything. I needed daily prednisone for a very long time. I understand how hard it is to blame the medication that works so well for debilitating pain.
On the other hand, I developed many additional medical problems while on "long term" prednisone for PMR. Most of my additional medical problems happened after I took Prednisone daily for more than a couple of years.
I took prednisone on a "short term" basis for many years for some other autoimmune conditions before PMR was diagnosed. I didn't ever have problems tapering off prednisone. Except for early onset cataract formation, I can't say prednisone caused any problems . I took high doses of prednisone frequently but only a month or two before tapering off.
I try to differentiate between "short term use" and "long term use" of prednisone. I didn't realize what all long term prednisone was doing to me until I was able to taper off prednisone after 12 years of PMR. I also got a warning from an incredible person on the internet who seemed to understand the unintended consequences of long term prednisone use.
https://www.healingwell.com/community/default.aspx?f=16&m=4073463
The conversation in the above link was when I started to look at prednisone differently. I really wish that I would have had this conversation sooner than I did.