← Return to Do not want to take steroids.

Discussion

Do not want to take steroids.

Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (30)

Comment receiving replies
@sharon44r

Thank you for the info. How long did it take it you to get off of the prednisone with that? And how long did you have to stay on Actemra after stopping prednisone.
Maybe there’s hope for me 😊
I glad you finally got something to help you off of it. I definitely will look into it.
Did you have bad side effects from it?

Jump to this post


Replies to "Thank you for the info. How long did it take it you to get off of..."

Actemra doesn't work as quickly as prednisone works to relieve pain. Once Actemra starts to work, it is difficult to predict if a relapse will occur or not. I don't need to take Actemra every day. I currently can't stop Actemra because the pain returns and my inflammation markers increase. It took me about a year in total to finally get off prednisone completely. Now I do a monthly infusion with Actemra.

If PMR is the primary problem, Actemra isn't FDA approved for this diagnosis. However, another biologic called Kevzara (sarilumab) works similarly and is FDA approved for PMR.
https://www.kevzara.com/hcp/pmr?utm_medium=cpc&utm_source=google&utm_content=PMR_Core&utm_campaign=G_24_KEVZARA_SEM_HCP_PMR_Branded_Condition_PMR_EX&utm_term=kevzara%20for%20pmr&gclid=Cj0KCQiAgJa6BhCOARIsAMiL7V99TOMmC0KsPSIxTVWPsLPBb9eIoXhgI2qPphlTZgpkV_xdV-dOoKIaAga-EALw_wcB
------------------------
Actemra is only FDA approved to treat GCA.

PMR research hasn't advanced very far for finding alternatives to Prednisone. I was on daily Prednisone for more than 12 years to treat PMR alone. I also had a long standing history of inflammatory arthritis before PMR was diagnosed. My cumulative dose of prednisone over 35 years was astronomical.

I don't know how well Actemra will work for you. My side effects from Actemra are minimal. However some people do have serious side effects from Actemra.