Hi Colleen,
All is great! My husband’s clinical trial for CAR T was on Nov 5th. He was in the hospital for 15 days. I’m happy to report that all the possible side effects with CAR T never materialized. He is tired from time to time, but nothing else. Yesterday, he was able to walk over to kilometers. We are staying very close to the hospital until Dec 2nd, as was recommended. The hospital calls us every day, I monitor vitals four times a day and we are required to go in for bloodwork twice a week for the first month. I am a huge advocate for clinical trials. We had run out of options, and there is, to my knowledge, only one approved CAR T therapy for CLL in the US. So we looked in Canada. I must say, when you are on a trial, you are very, very well cared for. The researchers are hoping that their treatments will eventually come to fruition. Medical science is amazing!
Nancy Simpson