Connect
← Return to Stem cell transplant vs CAR-T: What can I expect with CAR-T?
Discussion
Stem cell transplant vs CAR-T: What can I expect with CAR-T?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 1 day ago | Replies (14)Comment receiving replies
Hi Colleen,
All is great! My husband’s clinical trial for CAR T was on Nov 5th. He was in the hospital for 15 days. I’m happy to report that all the possible side effects with CAR T never materialized. He is tired from time to time, but nothing else. Yesterday, he was able to walk over to kilometers. We are staying very close to the hospital until Dec 2nd, as was recommended. The hospital calls us every day, I monitor vitals four times a day and we are required to go in for bloodwork twice a week for the first month. I am a huge advocate for clinical trials. We had run out of options, and there is, to my knowledge, only one approved CAR T therapy for CLL in the US. So we looked in Canada. I must say, when you are on a trial, you are very, very well cared for. The researchers are hoping that their treatments will eventually come to fruition. Medical science is amazing!
Nancy Simpson
Replies to "Hi Colleen, All is great! My husband’s clinical trial for CAR T was on Nov 5th...."
Connect
My wife underwent CAR T cell therapy for acute lymphoblastic leukemia in the fall of 2022. She experienced some of the side effects, but nothing extreme. She has been free of ALL for 25 months. However, she did recently undergo a lumpectomy and radiation for breast cancer. Her oncologist told her two years ago that there was a good chance the ALL would not return, but other cancers could present because of the beating her body took from all the chemotherapy she incurred. Since first being diagnosed with ALL in February of 2021, she's had, in her words, four bonus birthdays and anniversaries and will have four bonus Christmases and Thanksgiving. Without CAR T cell, this wouldn't have occurred.