← Return to Multiple medical disciplines- how do you manage it all?

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@val64

I hope you find someone to help you manage this issue, but I'm not too optimistic.

As far as I can tell, the way the US medical system works is that doctors are obligated to follow a series of treatment guidelines issued by each specialty. These are determined based on clinical trials that suggest what will work best for the greatest number of people. This is called "evidence-based medicine" and is designed to make sure that patients with the same disease don't get wildly different treatments based on differing beliefs and training of their doctors. The doctor's job is to follow these algorithms, which keeps them from getting sued and is also what insurance pays for. Not only is it not their job to think, but thinking is actively discouraged.

The clinical trials these guidelines are based on do their best to exclude people with complicating medical conditions. You can bet that your last dollar that having cancer was an exclusion criterion for all the Crohn's disease clinical trials.

It sounds like you have a good care team who may try to think about how to deal with your competing medical conditions, but there is probably very little data out there to guide them.

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Replies to "I hope you find someone to help you manage this issue, but I'm not too optimistic...."

Wow! Thank you. ,