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Cystectomy yes or no?

Prostate Cancer | Last Active: 6 hours ago | Replies (16)

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@heavyphil

I am in salvage radiation now and this thread is making me woozy. I was told of “possible” complications such as frequent or burning urination, perhaps hematuria but you poor guys are on a whole different level! I’m at my 17th tx today out of 25 and just yesterday my RO told me that if I have no symptoms at this point ( I don’t) I probably will be OK barring any unforseen complications.
I did take his comments with a large grain of salt, knowing that symptoms may arise in weeks, months or years. But I know the DRs need to project a positive attitude so I get it.
Sorry you guys are going thru this - nobody can predict what will happen to every individual getting radiation but we all take our chances when we hear the word ‘cancer’ and hope for the best.

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Replies to "I am in salvage radiation now and this thread is making me woozy. I was told..."

My experience with 39 treatments of radiation salvation treatment has not been good. Hate to post negative, but want to be adding reality. Had the radiation treatments in 2021 and bladder neck started bleeding in early 2024. Had surgery to cauterize, and that did stop it. Also had a lymphocele form that created a fistula between my bladder and the lymph seal. Infection set in as my bladder was dumping into this. Ended up with a couple of drains and another surgery to try to block the communication between the two. At this time, they also used Omentum(sp) to attempt to fix the tissue damage at the bladder neck. Had 68 HBOT sessions and feel it has helped. The surgery was not successful as it still leaks. Dr says I have too much radiation tissue damage and is suggesting a couple of options that don’t seem worth it with the ultimate decision of cystectomy. Very disappointed in not knowing what could be the results of radiation treatments. There was no mention of the road I have traveled. Not quite sure if I would’ve opted for different treatment or not at the time they make you feel that that is the only option. I think treatments have gotten better And more focused without creating fallout near the treatment sites. I’ve just decided on my own that you can’t take that much radiation without injuring something on its way to fixing what will eventually spread if not treated. Best of luck to you and hoping you have better outcome than many of us on these pages