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Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (30)
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Replies to "I totally understand you not wanting to take steroids. I never even take a pill for..."
I agree totally, you know you own body and know what you need with a flare. I found I go up for a week then I get back . But I was on 6 mg to 2 months got really stressed with breast cancer and upped to 11 mg and got down to seven in less than 2 weeks.
I found that when i get under 8-10 milligrams you have to stay on that dose longer to taper off. I have been on it for 2. 1/2 years and nothing else helps. I really don’t have a choice. Just taper slowly. I seem to flare at 5mg without stress. I guess my attack is not over or in remission yet. Best of luck !