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Side effects of Letrozole: Weird muscle reaction

Breast Cancer | Last Active: Nov 28, 2024 | Replies (17)

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@flowergal

I had a second follow up with my surgeon. All was stable, mammo and MRI. I told her about all the physical symptoms and now blood work changing rapidly.
Told her my oncologist said chance of reoccurrence is 50/50, she explained that is the general population my age, my diagnosis etc. She said she would help find out more information. She called me later that day and said she presented my case to oncologists she works with at her hospital and they all thought my case would have a low % rate of reoccurrence.
With all factors considered, I stopped the Letrozole.
My oncologist probably won't be happy but I feel ok with this decision.

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Replies to "I had a second follow up with my surgeon. All was stable, mammo and MRI. I..."

My doctor figured out my chance was 14% stats are just stats. They told me my recurrence of vaginal cuff cancer was 1% it means nothing if you’re the one who gets it? There are so many people of this site with recurrence.

After three visits back to my oncologist, I too stopped the Letrozole - on his watch until mid January and we'll reevaluate. My symptoms are debilitating - my hands are worthless, my whole body just hurts. Bones, muscles etc. I have no options for pain relief since I'm also on a blood thinner....

How long after stopping did you notice any improvement in how you feel? I'm very worried about the neuropathy in my hands being irreversible.

Hope you are improving.