Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6 6:00am

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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@anitannapa

Thank you for the information. I'm currently trying to get in for an appointment at Mayo. Since I would be traveling from the West to the East coast, I would prefer to choose my doctor vs being assigned one through the Motility Clinic (if indeed that is how it works). Any suggestions?

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I think the Motility Clinic works as a multidisciplinary team so I'm not sure if you can make an appointment with a specific doctor unless you get a recommendation from someone and can request an appointment on their bio page. If you go the Motility section for Rochester on this page, it lists the doctors and you can read their bio plus there is a link to request an appointment - https://www.mayoclinic.org/departments-centers/gastroenterology-hepatology-digestive-care/sections/doctors-by-location-and-specialty/gnc-20356421.

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Thank you for the information.

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@terree

I was told to take metoproclamide and when researching I see statistics show it causes Parkinson’s so I would not take it. I stopped eating. I’m watching carefully but it started back again now and I’m frightened. need help people.

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Inc reply to terree to @terree I’m newly diagnosed with this condition. My dr decided this after my gallbladder removal and I was still
having no hunger. I am scheduled for a 4-hour study of my gastric movements to try to pinpoint the cause.

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@terree

I was told to take metoproclamide and when researching I see statistics show it causes Parkinson’s so I would not take it. I stopped eating. I’m watching carefully but it started back again now and I’m frightened. need help people.

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Hello. I was also recently diagnosed with GP. I was also fearful after reading the warnings on that med. But after talking to my dtr who is a NP I have started it. There is no guarantee of course but she told me getting Parkinson’s from it was very rare. We all have to make our own decisions though. Best of luck to you.

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