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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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exactly the same about the chest and shortness of breath, ive seen sm doctors, i dont do anything anymore because of how i feel
have u figured out what it was ?
This is what is happening to me. I don't know what it is or what to do about it.
GES test scheduled for next Mon. 2 wks ago appt never pre- Auth.
I'm new to this Gastroparesis. Slow emptying or paralysis of stomach. Everything liquid. Cept squash w/o seeds, sweet tates. Difficult to digest chicken & fish. Protein 30g beverages. Prenatal vita & minerals. Vitamins B & D. Any suggestions appreciated.
I am a 67 year old previously very healthy woman who now experiences severe gastroparesis. I also battle with constipation. Acid reflux is an annoying by-product. Having gas is the worst I must say as it settles into my whole body. Huge box of Rx's that don't work. Anyone have thoughts that this could be long COVID?
@bkatz43 I'm w GES 4 h test next Mon. How was your gastroparesis diagnosed? GED test i.d mine in 2019. Was never told. 4y's following cholecystectomy i thought it may be vagus nerve damage from this surgery. Nope. 1 month prior to op this info in my chart diagnosed w GERD, chronic gastritis & gastroparesis. For 4y's IBS-D. New dr, fresh eyes, rx Colesevlam & dicyclomine stopped D in 12/2023. Only to C. Entire 1 yr. For me to go back into my chart to check CT's, MRI's, EUS, & on & on. Discovery; gastroparesis. Has anyone had the ring surgery for digestion?
I ditched protonix after 22y's. I stopped metamucil, benefiber, something to go would meet in my stomach 1x a week & that's stopped. I have poop balls. Read re gastroparesis these May be undigested food. I ate salad 2 weeks w only going 1x a wk. Dr's one of them relationships, can't live w them, can't live w/o them. Kickin ourselves for not knowing right questions to ask!
I was diagnosed w/ gastroparesis many years ago, but no real problem until I had fundoplication, which means wrapping the upper part of my stomach around my esophagus. (because I had a hiatal hernia and my stomach had wandered up into my chest, interfering w/ breathing.)
I cannot figure out how to eat that doesn't cause diarrhea. Or constipation. Mainly I need to avoid fiber. I guess. I may need to cancel out on the 3 day family reunion.
Awww that is terrible. Everytime i come on here i learn something. I didn't know re your stomach. Wow, best to you