Reading your post and others. I've been on this roller coaster of PMR for nearly 5 years.. sad to say. I've had flares several times. Each time has been different not as severe. I'm on just 2 mg. And can't seem to go below that. I was P free for several months, then got a nasty flu in June and soon thereafter ,boom back to bilateral stiffness ( immobility) of shoulders and knees and cramps.
I'd say that perhaps your taper is too aggressive? Normal course is 2.5-5 years according to my Rheumatologist. I too wanted to get off the P swiftly, learn the hard way that was not going to happen. But with that said. We're all having unique experiences.
Question for all:
Do you have pain and cramping in your muscles? That seems to be one of my symptoms. Strange cramps in back, buttocks & pelvic area, neck. Not the usual toes and calves.
My Md says this isn't typical. But it emerged when PMR started.
Take care all, this is a bummer for us all but we can be active... just not quite as much. Time to rest is important for certain.