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Nocturnal Seizures

Epilepsy & Seizures | Last Active: 1 day ago | Replies (28)

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@robertm1215

Hi Chris,
This is very helpful. I wasn't familiar with the term "complex partial" but my son suffers full blown grand mal seizures. I also believe that each individual is unique and no two cases are the same so an individual approach is needed.

How long have you been dealing with seizures? Had they only occurred after long travel or did something else trigger them? Do you take medication?

I like your approach and hope to incorporate it into future travels although it may be a bit more challenging with a stubborn 23 year old male who is not exactly open to new ideas (e.g., yoga). Our recent travels have thus far tried to force ourselves into the new time zone although this recent trip wasn't as big of a change which I think is what resulted in it taking longer for the seizure to occur - along with an early wake-up call on that day and jam-packed schedule preceding the seizure. I had already started wondering if a more relaxed schedule for future travels would be beneficial and your approach has convinced me that it would - although it may take some trial-and-error. We have been trying to convince him to download an app that provides a seizure alert to designated contacts but he has balked at that thus far (I think it's a combination of the cost and an invasion of privacy/infringement on his independence).

I'd be interested to hear from you after your trip to Japan or other similarly long adventures. Be well!

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Replies to "Hi Chris, This is very helpful. I wasn't familiar with the term "complex partial" but my..."

Hi @robertm1215, good morning
Taking Nayzilam on your trips is a good alternative in case of son's seizures. Reading your post to Lisa, I recalled I have used such medication in the past (mine was made of medical cannabis) and it worked pretty well. It interrupted my seizures immediately and limited the effects after the seizure. I totally forgot about it and I thank you for reminding me of this medication. I will ask my current doctor to prescribe it to me again, as it can bring a feeling of security in case a seizure happens.
Have a good day!
Chris (@santosha)