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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: 2 hours ago | Replies (641)Comment receiving replies
Hi everyone. I am curious if there is anyone in this group who was diagnosed with Sjorgens from a young age and how it has affected you. A little about me ... I am 22 now but have been diagnosed with Sjorgens since I was 13. I have always dealt with dry eyes, dry mouth, joint pain, fatigue, and brain fog. In the last few years, I have noticed these symptoms worsening and even dealing with other (new) symptoms that I usually don't experience. At the same time I was diagnosed with Sjorgens, I was also diagnosed with celiac, intolerance to fructose/lactose, ITP, Undifferentiated Connective Tissue Disease, GERD, and a few other health issues that have made it challenging to cater to my Sjorgens. Because of my GERD and past ulcers, I have not been taking medication for any of my health issues, as I tend to vomit them right back up. Recently, I have been debating trying hydroxychloroquine again, as that's what I was taking at the beginning of high school. Does anyone have any issues with digesting medication? What do you do?
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@hannahbernard1 Wow that was a young age to find out I was in my early 40’s I went to the dentist and asked about my tongue being white all the time and he said he knew what it was because his wife had Sjogren’s so I had I believe blood test done. Having dry eyes I tore the tissue on my eye, dry sinuses , itchy skin. I just seen the GERD Doctor today I can’t wear my cpap because I wake up choking from the acid, I need esophagus surgery to tighten that sphincter at the bottom of the esophagus. I’ve been taking meds for it since 1998 . Make sure the head of your beds elevated, I was at one time using papaya enzymes from the GNC store which helped until I had a bad spell and the doctor put me back on medicine. For the dry eyes my Optometrist prescribed Miebo it’s an oily eye drop so it helps lubricate and then I use a gel drop at night before bed