Hi, sorry to hear that you have been diagnosed with this horribly frustrating condition. I was trying to find my post so that I can see what symptoms I have already listed because there are sometimes just so many. You often feel like a crazy person. I am surprised that you were actually able to get the diagnosis of vestibular migraine. None of the doctors I had been to even mentioned the possibility. I actually found the diagnosis on my own by searching John Hopkins site. There is a female Doctor Who does a video for Johns Hopkins on vestibular migraines. When I saw this, I almost started to cry. I could not believe what I was hearing. I mentioned it to my Eye Doctor and he knew of a neurologist who treated only vestibular migraines and was considered the best in the state of New Jersey. He will not agree to see you until reviewing your charts and symptoms. I have to say little known about our condition and it’s my belief that there is very little effective treatment. I don’t want to burst your bubble. Some people have had success but I question some of their symptoms even as I have my own.
Sometimes you just question the whole damn thing. If you had a broken leg or a broken arm or even a blocked artery, you could get a more concrete diagnosis and a definite course of treatment but this is so much guest work much of which has not really worked for me.
I will probably have to end this rant in a couple of minutes because I am limited with the amount of screen time I can view even though I am voice texting. I have very little functional time. My mornings are my best time. So I get as much as I can get done in the morning And then I have to lay down for an hour or two. And start again but it does get progressively worse throughout the day- lightheadedness, head pressure, eye pain, and off balance issues and more.
They all worsened based on physical movement and visual stimulation. I will try and reach out again later to see if I can provide you with any further information. If you have any questions, please feel free to ask.
Terry