First off I’m sorry you’re dealing with this. I have also been dealing with it. I would offer up some advice, with the caveat that I have yet to find a solution (going on a year now), though am hoping I’m getting closer. My suggestion is remember you know your body than anyone, yes even doctors! A little background, and I will keep it short, I suspected neck issues, for a long time as after my first surgery, my pain never went away, but my surgeon said he did everything right. So two years later, my PCP sent me on wild goose chase thru 2 ENTs, (multiple work ups), then a cardiologist as my symptoms were worse when working out, which concluded with a cardiac catheter, then on to a neurologist, who said I won’t find out what’s wrong just give you drug “just like we treat diabetes, drugs to help symptoms but no cure.” Needless to say after that statement, I demanded an MRI of the neck and lo and behold, my discs are degenerating with moderate stenosis etc. so what’s my point? Take control of your care, with this support group along with hours of research (and great people cheering me on) I have done that and believe now I’m on the right track. Will see but, I will tell you if I had demanded the MRI first, I believe I could have stopped some of the madness we call “the medical industrial complex”. Good luck, I will continue to post after my doc appt in Dec, but I will continue to read and monitor this site as it is the only thing that has kept me sane.