← Return to Significant osteoporosis: I need a bone plan

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@suzfuse46

Hello Holly,
The bone health specialist I was seeing gave up on my case. The last NTX he did was back up to 31.2. on 1/14/2022. I have a new bone health doctor who is a woman and hopefully she will be more on the ball. I'm still dealing with osteopenia and had a DEXA scan in May so at least I'm holding onto osteopenia and not back to osteoporosis. My stomach is beyond tolerating any of the oral meds and I didn't want to start the Tymlos after what I went through with it again so trying to walk more with an another failed thoracic and cervical spine surgery in January, 2023 and taking calcium and vitamin D supplements. Thank you for your message since the N-telopeptide concern is something that I had not brought up with the new doc. I have seen more journal articles pertaining to the NTX but didn't follow them since it had been dismissed.
I wish you the best of luck in finding answers with your new endo. I have found Medscape to be a good source of information. Keep up your spirits and we'll hope you find the solution.

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Replies to "Hello Holly, The bone health specialist I was seeing gave up on my case. The last..."

@suzfuse46 Thank you so much for your kind reply. I'm so sorry you've had such a rough go of it, but I'm very glad to hear that you are holding onto osteopenia. May your healing continue. I've read up a bit regarding elevated serum NTX secondary to Tymlos treatment, but ultimately it seems that this test is unreliable and CTX is preferred. As you well know, the rabbit holes to go down are endless, so I will wait until I have a new doctor to explore this subject further. I'm very grateful for your support and encouragement and sending you the same. May you have a magical holiday season ahead, and keep your spirits up as well. We've got this!