← Return to Struggling with decision to move forward with Allogeneic Transplant

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@katgob

csherbs. Check out the Bone marrow transplant threads. I was happy to see deb13 with a great update. Melphalan was the chemo used to clear out my bone marrow. Nausea was some trouble, but they will give you meds through the IV. You keep them posted on how you feel. The transplant team wants your best recovery.
I was diagnosed with MDS in October of 2023. After the Bone marrow biopsy, I went into the Be A Match site and a donor was found in a few months. My transplant was April 9th, 2024. I am 228 days past transplant.
Let me talk a moment about GVHD. I was treated at City of Hope in Duarte, CA. Before my transplant i was offered to be in a research study. A drug that was used once people had GVHD symptoms had been tested as a daily drug which for me was from Day 5 to Day 100. I have not had any GVHD. I had a nearly perfect match, a 26-year-old fellow. I hadaaTP53 mutation and although i was low to medium with my MDS, having walked through breast cancer in late 2021 with a BRCA2 mutation, I knew a watch and wait was not for me.

They plan for 30 days in the hospital, but if your numbers are rising and you are eating and improving day by day they may send you home. Lori in the BMT threads will say what i am learning. Losing my hair for a 2nd time, and this time it is not coming back my normal red is funky thing. All my life i was the redhaired girl.
Read through the threads here and speak with your medical team. Your answer will come.

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Replies to "csherbs. Check out the Bone marrow transplant threads. I was happy to see deb13 with a..."

@katgob
Thanks so much for your update!

I'll ask my transplant doctor about that daily GVHD treatment. Really encouraging to hear that you didn't really have any struggles with GVHD. I'm about a year behind you - diagnosed in October 2024. Starting chemo soon to get my blasts down as a bridge to transplant.

I'm still scared, but hearing from you and others that have been through it with good outcomes helps tremendously. Sounds like you are on your way to pretty much a full recovery! That is truly amazing!

When you say nearly perfect match... What does that mean exactly?