Does anyone have a solution to help manage Reclast side effects?

@hlp123 so sorry this happened to you. And you only took Prolia for one year, followed by the suggested Reclast,

I hope you have a good endocrinologist. Not sure what if any studies show about this sequence. Chances are the doc will try Forteo, Tymlos or Evenity.

Someone posted good results for Evenity after Prolia, though effectiveness was reduced. The same might be true for Evenity after Reclast but again, someone on this forum posted good results for that too.

"Great Bones" says that Forteo and Tymlos aren't effective right after Prolia (due to rebound) but we would be interested to hear if they are possible in your situation. I know Tymlos is reputed to help with healing since I took it right after spinal fractures.

I am so glad that you got the head of Endo involved. Since you have fractures after (because of?) treatment, perhaps the doctors will take extra care in their recommendation. Let us know!

Thank you so much for your response ! Yes, the endocrinologist that I sought for a second opinion said that even though I was diagnosed with fractured ribs in August, that I had to wait until December and then get the blood work that he wanted to give my ribs a chance to heal before he would decide what medication I should take to protect my bones. My bone density score from from August 27th are : Lumbar spine L-1-L-4 level at -1.7, at L-2-L-4 level at -2.2, at femoral neck -3.1, hip at -3.2 I really appreciate the helpful advice from you. After my year on Reclast, the doctor said the dexa scan showed that the Reclast had locked in the gains from the Prolia and that I would me ok. This is not the case.
Thank you !

I just typed a long response to your message and then I tried to print it out and I can't find it. I don't know what happened to the message. Please let me know if you got my response ! Thank you
My Dexa scan results from August 27, 2024 were included in my response. Lumbar spine L-1-L-4 level -1.7 Lumbar spine at L2-L-4 level -2.2 femoral neck -3.1 total hip -3.2 I hope my whole message is saved somewhere
Thank you, I hope we can continue to share information.

@windyshores Thamks so much for all the information you provided - and to everyone here. Certainly gives me comfort having a support group like this. I should have results by Monday and doctor follow-up soon after. Now I feel more knowledgeable and will be ready with some questions.
I truly do feel my doctor has been a partner in my journey. When my torn rotator cuff surgery was stopped because my bones “were like butter,” this doctor (endocrinologist) prescribed Tymlos (for 2 years) as well as discussed diet and supplements. After the 2 yrs, I had a successful Rotator cuff surgery and that’s when we moved over to Reclast. Started with 1/2 dose year 1; next year had full dose; due to have dose 3 in 2025. But, as mentioned, broken wrist with a black ice fall, and Dr suggested getting a “booster” 6 mos early. I thought a booster would be half dose, busy they gave me full. That was in August and here we are.
Stay tuned for test results and Thanks to all for listening.

Met with the Rheumatologist this week. After reviewing my history, bloodwork and ESR and CRP abnormal markers, she diagnosed me with Polymyalgia rheumatica. I am starting Prednisone 5 mg/2 in morning and 1 at night) for 3 mos. Follow/up in 3 wks.
She said that there are no tests that point to what may have caused this. I did share with her some of the stories on this site and some case studies connecting to Reclast. She said it could be a rare side effect, but can’t say
Hoping the Prednisone brings relief.

Paula, Please let us know how the Prednisone works after you've taken it for awhile. I don't have Polymyalgia Rheumatica, but I am looking for something to conteract the Reclast side effects. Maybe Prednisone could help.

Unfortunately steroids contribute to bone loss if taken at a certain level for a certain amount of time. Many doctors are leery of prescribing for anyone with osteoporosis unless there is a very clear need. Let us know if your doctor does prescribe!

Unfortunately steroids contribute to bone loss if taken at a certain level for a certain amount of time. Many doctors are leery of prescribing for anyone with osteoporosis unless there is a very clear need. Let us know if your doctor does prescribe!

Windyshores, Trying to get this out to you and I just lost a couple of paragraphs. Trying again. I want to say first of all that I hadn't read anything regarding Reclast side effects when I started experiencing these pains etc. I had the infusion in February of 2023. The day after, I woke up with major pain in my shoulders. I've never had shoulder pain. It got better over the next couple of weeks. Then I started having excruciating pain in my right foot when I went from a sitting to a standing position. I called my PCP and told her I needed an x-ray because I thought my foot was broken. The x-ray showed nothing. Since then, the shoulder pain has subsided but the foot pain has come back about three times. It lasts about a week each time. Other side effects that I've had since the Reclast infusion are weak legs, swelling in feet, pain in legs, and toes (toe pain so bad I sometimes cannot sleep) numbness in my right leg, dizziness (serious dizziness) cold sweats, unable to regulate my body temperature, headaches. These all come and go. Thank goodness they don't all come at the same time. I've talked to several doctors of different persuasions, but no one can give me a good answer as to why I'm having these side effects (Of course, I'm convinced it's the Reclast due to the sequence of events), or, more importantly, how to fix the problems. It stays in your body for five years. Is this what I have to look forward to for the next three and a half years?? WindyShores or anyone, let me know if you have any questions.