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Double mastectomy caused rare infection
Breast Cancer | Last Active: Nov 28 8:31am | Replies (12)Comment receiving replies
I've never heard of that type of infection so I dont have any input there, but I second what @triciaot said that I would prioritize meeting with infectious disease doctor from a top hospital, like a teaching hospital. Maybe even ask ahead of time if that doc or office has experience with that specific infection bacteria? It sounds like perhaps all the subsequent surgeries went badly b/c the initial infection was never properly treated, so good infectious disease doc should hopefully be able to get to the bottom of it and take care of it. Once its truly gone, a good breast recon plastic surgeon can help her if she wants recon, lots of options. But I wouldn't even think about or attempt any recon with any kind of latent infection.
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Yes, that is the plan. She has to get rid of the infection, which seems to lay dormant. She thought it was gone, but a workout flared it up, ending up in the e.r. again. Now they say they want to take her nipples. She's already so mutilated, I don't know how they will be able to reconstruct them even after the infection is gone. I am worried about her, not only for her physical well being, but her mental well being. I can't help her, but I just have to do something to help her get proper care. She was told that only 50% of the people who get this infection survive. She has so many questions, as do I. We just can't seem to get any answers.