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Replies to "I appreciate everyone's responses. I had appt with my Rheumatologist. He checked my sed rate and..."
Polymyalgia Rheumatica (PMR) | Last Active: 8 hours ago | Replies (21)
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I appreciate everyone's responses. I had appt with my Rheumatologist. He checked my sed rate and CRP. All normal. Also did some XR's to R/O Inflammatory Arthritis, all normal. So, my discomfort probably muscular, not PMR flare. He wasn't worried about me increasing my Prednisone from 3mg to 5mg. He advised me to return to 3mg and continue tapering. So far so good. I have the date for my last dose! Hopefully.
PMR is such a unique experience for all of us. I value everyone's responses and wish you a continued recovery and good health.
Replies to "I appreciate everyone's responses. I had appt with my Rheumatologist. He checked my sed rate and..."
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Reading your post and others. I've been on this roller coaster of PMR for nearly 5 years.. sad to say. I've had flares several times. Each time has been different not as severe. I'm on just 2 mg. And can't seem to go below that. I was P free for several months, then got a nasty flu in June and soon thereafter ,boom back to bilateral stiffness ( immobility) of shoulders and knees and cramps.
I'd say that perhaps your taper is too aggressive? Normal course is 2.5-5 years according to my Rheumatologist. I too wanted to get off the P swiftly, learn the hard way that was not going to happen. But with that said. We're all having unique experiences.
Question for all:
Do you have pain and cramping in your muscles? That seems to be one of my symptoms. Strange cramps in back, buttocks & pelvic area, neck. Not the usual toes and calves.
My Md says this isn't typical. But it emerged when PMR started.
Take care all, this is a bummer for us all but we can be active... just not quite as much. Time to rest is important for certain.