← Return to Just found out my calcium score is 474. Next steps uncertain.

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@rtchacko

The article is about a person with very healthy life style discovering his very high CAC of 2750. He went to a lipidologist and upon extensive studies diagnosed him with a condition called, "Sitosterolemia, a hereditary disease that allowed the fatty parts of plants—the sterols and stanols—to enter my bloodstream. Most people process and excrete these substances into the GI tract. My body absorbs these plant sterols, which wind up as calcified plaque in my coronary arteries. " Per his doctor, “I see this frequently.” She suspects the disease might help explain why some young athletes die unexpectedly of heart attacks."
"the diet I had been prescribed was exactly the wrong diet for Sitosterolemia. The sterols and stanols that caused the calcium lining my arteries were in fact most common in the nuts and vegetables I had been feasting on for months. They are also found in high levels in canola oil and olive oil, the fats routinely recommended for heart patients." His doctor switched him to Zetia from Rosuvastatin. Each case is different

Since I am on a heart healthy diet for years with an active lifestyle and a high CAC, I am going to look into testing for Sitosterolemia. The insurance may not cover it. If I have the condition, I am on the wrong diet. At least I want to rule it out. Once you have a high CAC, nothing can reverse it, but I want to do what I can from this getting worse.

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Replies to "The article is about a person with very healthy life style discovering his very high CAC..."

I sent article to my cardiologist and he said it was very rare condition and he didn't even know a lab in the DC area that tested fir it.
Maybe he will look further, or maybe I will, but it does sound like a longshot. However I fit the description in article except i never had angiogram