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@friedrich

To mbryant1380:

Thank you for providing the link to the video by Dr. Sletten from the Mayo Pain Clinic. Dr. Sletten’s presentation is concise and well-organized. He speaks in a way that is articulate and engaging. He provides a framework that explains why we and our healthcare providers are so mystified by the symptoms we experience. And, why so many conventional approaches to treating those symptoms do not work.

Dr. Sletten also describes a new and different approach that has some success in treating our symptoms. He is realistic in describing the treatment as requiring time, effort, and patience on our part, and the coordinated use of different healthcare resources.

Dr. Sletten’s framework fits my experience of LC Post-Exertional Malaise (PEM). Also, the recommended “Pacing” approach to managing PEM, which works for me.

— Fred

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Replies to "To mbryant1380: Thank you for providing the link to the video by Dr. Sletten from the..."

You are very welcome. I really appreciate how Dr. Sletten’s explanations were very detailed, informative and yes very engaging. He really dissects these conditions and how they manifest in other parts of the body as well. And most importantly that these physical symptoms are real, not just “anxiety” like I was told a few times. No the symptoms are making us feel anxious, worried, stressed, depressed, frustrated and even fearful.
Yes pacing also works for me, I don’t experience PEM that bad but the joint and nerve pain, boy oh boy!
It seems like our condition is finally getting recognized, my LC doctor says a lot of grants are now being given towards more studies and trials. Let’s hope…