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@sisterpulse

Hi Barbara
I had the pseudomonas twice last year and it was successfully, treated with clarithromycin meds and colymycin inhalation. But I also had 2 Bronchiectasis flare ups April and August and needed IV Tasobactum for two weeks at home with nurse visits daily to change the pump.
I am now more vigorous with cleaning and disinfecting all my equipment, including new tubing, filters/ mouth pieces for the Pari Boy nebuliser.
Like you I am avoiding the BIG 3 as my ‘ quality of life ‘ is ok for age 77 and I can’t see the benefit of the BiG 3 at the moment versus those ghastly side effects, eating patterns, over the counter meds etc.
I am worried about getting cavities or a faster growing MAC but now just getting on with my life and family responsibilities.
I guess I will have another CT and sputum for path ( but MAC in the UK takes 15 weeks to incubate) before I see the Respiratory Doctor in February.
Let’s be positive and see if we can make it without the Big 3 or 2 for another few years..
SP

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Replies to "Hi Barbara I had the pseudomonas twice last year and it was successfully, treated with clarithromycin..."

Hello to you in UK. I have a wonderful memory of being in the UK. In London way back in the mid eighties at Christmas visiting my brother who lived there for a short time. Woke up to an unexpected snowfall the morning we had to catch a flight out to the USA....It was such a surprise when we opened the door to leave the flat. W all said in surprose "It snowed." ..... and then begain our treck to the to the train, with snow under our feet, and to the airport. All worked out very nicely however.
It is time consuming and a chore trying to keep everything from invading our lungs. I am still quietly and not nervously working my way to a decision about taking or not taking the antibiotics. Yes I wonder about that also....if we don't begin the antitibiotics....the chances of getting cavities or the infection growing more or we might just be able to keep it at bay or slow it down with what we do for ourselves. From what I read nodules and cavities can develop for different reasons and yes due to infections.
It would be great if I can hold it at bay and go another two or more years without the antibiotics since I have not had a "full" blown exacerbation and feel well. It is the need to clear the throat of what comes up nearly all day, especially after I eat.
Yes the best thing for all of us....stay positive and have faith in ourselves.
Barbara