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@deborahyost3

Hi, I'm Deborah. I have primary sjogrens and degenerative arthritis. I have been on hydroxychloroquine for my sjogrens for about 5 years and I have been on low dose naltrexone for both conditions for about 3 years and both of them help.
I just wanted to mention that I actually got my diagnosis confirmed, although either sjogrens or rheumatoid arthritis or lupus were all suspected for several years- when my retinal specialist had my eyes dilated and was looking at my retina for an entirely different condition(wet macular degeneration) And he said something about my sjogren so I said I don't have sjogrens he said oh yes you do.
And he had a conference with my rheumatologist and then I got my diagnosis.
So! I never did have the lit biopsy but apparently there were changes in my retina and ocular nerve that you only see with sjogrens.
That's an unorthodox way to get a diagnosis -but that's how I got mine.

Good luck! Having a rheumatologist that knows you. Have
"something" but they're not sure what and will proactively start treating you while they figure out what the heck it is is a good sign.

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Replies to "Hi, I'm Deborah. I have primary sjogrens and degenerative arthritis. I have been on hydroxychloroquine for..."

Thanks, @deborahyost3. I too saw an eye doctor many years ago due to all the red spots in my eyes. That eye doc had also mentioned Sjogren's to me but, unfortunately, there was no one to follow up with. I'm hoping to find a rheumatologist who doesn't just dismiss my symptoms. I've tried really hard several times over the past 25 years to get some answers but doctor's dismissive attitudes don't do much for my mental health.
I'm hoping these latest positive test results help to get me taken seriously.
Thanks again,
bluesmom