Aren’t you on ADT yet? If not, you need to see different doctors. What type of doctors are you saying now? Hopefully they’re not just urologist, they do not specialize in prostate cancer and do not all know how to treat it. Some medical oncologist also don’t study enough about what needs to be done with prostate cancer patients. The standard of care is to put you on ADT.

At this point, my doctor would’ve put me on Lupron as soon as my PSA started rising above .2. After being on Lupron and it started rising again, they would put me on a drug like. Zytiga or one of the lutamides.

What was your Gleason score? If it is above a seven, they might put you on the second drug right away if you were seeing a Genito urinary oncologist, the type of oncologist that specializes in prostate cancer and knows what the correct treatment is.

You are facing a potential metastasis problem if you let this continue the way it’s going. Have you had a PSMA pet scan? Once it has risen as far as you have had your PSA rise, you should’ve had that scan.

Your life’s future depends on you doing something proactive about this.

Sorry to hear of your recurrence…but what are your DRS waiting for? Your PSA going from undetectable to .99 and that is an indication that something’s on the move.
I would want to be put on some form of ADT, but first have a PSMA to see if anything lights up. At .99 something must be there, right?
You may only have a small single metastasis which can be successfully treated with SBRT. There have been cases of distant metastases showing up as far away as the clavicle but not present anywhere else. That one particular patient lived for another 14 yrs before he succumbed to something else. Guess we all gotta go from something😁