Neuropathy and Cervical Stenosis?

Posted by Ray Kemble @ray666, Sep 29, 2023

I have been reading the evolving thread on neuropathy and lumbar stenosis with particular interest. I have idiopathic sensory-motor PN, giving me terrible balance and difficulty walking, even the shortest distances. In March 2022, I was diagnosed with cervical stenosis (“critical stenosis centrally at C4-C5, C5-C6 without cord signal change”: my neurosurgeon’s note). I had had no cervical-area symptoms then; I had been looking for an answer to my lower-body PN. That I had cervical stenosis came as a surprise. The neurosurgeon offered cervical surgery but cautioned that even a positive outcome might have no effect on my bad balance and walking difficulty. We decided on –– and are continuing with –– a wait-and-see approach to my cervical stenosis. Reading about others’ experiences with PN and lumbar surgeries has me wondering if any of you have ever had cervical stenosis surgery, only to be pleasantly surprised to find that it helped reduce or even eliminate your lower-body PN symptoms.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@artemis1886

I had cervical surgery. Mine did not take. The neurosurgeon said the doctor that performed that the acdf cervical fusion should have never been done. They should have done a laminectomy. That's what they did on my lower back. I had severe axonal sensorimotor peripherial polyneuropathy/ cardiac autonomic neuropathy/small fiber way before the stenosis. The problem they did not tell me about is I have to have my esophagus ballooned open every six months otherwise it closes off and you choke. It will not change the neuropathy problems. Motor neuropathy causes tremors in hands/arms/legs. It says movement disorders. I had to go to Boston to put two and two together. They kept calling it essential tremors but that is one sided. Now I am being tested for CIDP. Peripheral neuropathy caused by diabetes, autoimmune, chemotherapy, some medications ( on the insert it does not say neuropathy it says pins and needles) and idiopathic. Mine is autoimmune and I test negative for everything almost. I tested 13 for rheumatoid arthritis and you have to test 14. Strong family history. I posted all the labs that I had to have done in order to see a research neurologist based out of Boston. I live in Texas. These are the doctors she recommended that I have. Immunologist,
Neuromuscular neurologist and Neuromusclar physical therapist. I get severe muscle spasms, tremors (can't hold a glass or cut up my food. Sometimes my husband holds my glass and if I can't get the food to my mouth he feeds me. I can't feel my hands so I constantly cut them needing stitches, bladder problems) I think the worst is the muscle spasms and tremors. Nerve pain wakes me up every morning at 230 am. The surgeries for my cervical and lumbar made no differences for me. Instead, it caused more problems. My cervical was done due to injury from a seizure. I could not hold a empty glass. I would drop it. I fractured T7 due to a seizure. I have spinal bifida also in my lower back causing problems.You can get seizures from neuropathy just an fyi.

Jump to this post

i am 69 and have severe spinal stenosis, scoliosis and all the others. I live with pain and it gets boring. I often thought of surgery and after mris, catscan and neuro surgeon who told me he would not suggest surgery since it would 13 hours to fix me and felt cure was not in the outcome. Said options shots, medication and have a good life. Most surgeries i hear about do no good just worse. People in nursing homes from surgery. I live with it and suffer. I wish you the best!

REPLY

I have multiple compressed discs and scoliosis and have similarly avoided surgery after a thorough study of ( mostly unsatisfactory) surgical outcomes. Shiatsu massage, swimming and walking help me.

REPLY
@jchet

Where are you from? Who did your spine surgery? So glad it was worth it and doing much better. What were your symptoms due to neck stenosis?

Jump to this post

@jchet
I had C5C6 stenosis and spinal cord flattening due to disc bulge/herniation and bone spurs. My symptoms included neck pain/stiffness, daily headaches, arm/hand weakness which caused me to drop things and made handwriting worse, loss of bladder control/leakage, and feeling like legs/feet were in cement boots making walking very difficult. I was diagnosed with cervical spondylitic myelopathy which is injury to spinal cord and ACDF surgery on C5C6 was necessary to relieve pressure from spinal cord and prevent further progression and worsening of symptoms. After surgery, I was relieved of some of my symptoms which I was glad because the surgeon said that some do not fully regain function because damage to spinal cord is permanent and irreversible.

I live in RI and went to OrthoRI and had Dr. Ian Madom do my surgery. He had many good ratings online which made me choose him. I have no regret having the surgery and wish other doctors diagnosed me sooner so I could have had the surgery sooner (was not properly diagnosed for 5 years). I am currently 54 years old and female.

REPLY
@dlydailyhope

@jchet
I had C5C6 stenosis and spinal cord flattening due to disc bulge/herniation and bone spurs. My symptoms included neck pain/stiffness, daily headaches, arm/hand weakness which caused me to drop things and made handwriting worse, loss of bladder control/leakage, and feeling like legs/feet were in cement boots making walking very difficult. I was diagnosed with cervical spondylitic myelopathy which is injury to spinal cord and ACDF surgery on C5C6 was necessary to relieve pressure from spinal cord and prevent further progression and worsening of symptoms. After surgery, I was relieved of some of my symptoms which I was glad because the surgeon said that some do not fully regain function because damage to spinal cord is permanent and irreversible.

I live in RI and went to OrthoRI and had Dr. Ian Madom do my surgery. He had many good ratings online which made me choose him. I have no regret having the surgery and wish other doctors diagnosed me sooner so I could have had the surgery sooner (was not properly diagnosed for 5 years). I am currently 54 years old and female.

Jump to this post

hi and glad your surgery went well. I will deal with my issues since doctors use us as lab rat. I didn't think my golden years were going to be this way but they are and sorry but this is what it is. Too many surgeries to people with no good outcome. Stenosis is not a good card hand to play but you must.

REPLY

I am a 59-year-old female who has had 2 lumbar surgeries (2nd one the placement of hardware) and 2 cervical surgeries for my spinal stenosis/arthritis. Upon the lumbar I now have neuropathy in both feet from the knees down (I feel very little) which has created Charcot foot and now I wear a custom boot on my right foot. I also have balance issues due to this. And after the cervical surgeries I now have neuropathy within both my hands. I get muscle spasms in my legs, feet and hands along with electric shocks (that is what I call the sudden sharp pains I get as it does feel like getting an electric shock). My hands/fingers hurt, and I have an office job requiring me to type all day. I do take tramadol and gabapentin but are there any other suggestions especially for my hands.

REPLY
@lkristoff

I am a 59-year-old female who has had 2 lumbar surgeries (2nd one the placement of hardware) and 2 cervical surgeries for my spinal stenosis/arthritis. Upon the lumbar I now have neuropathy in both feet from the knees down (I feel very little) which has created Charcot foot and now I wear a custom boot on my right foot. I also have balance issues due to this. And after the cervical surgeries I now have neuropathy within both my hands. I get muscle spasms in my legs, feet and hands along with electric shocks (that is what I call the sudden sharp pains I get as it does feel like getting an electric shock). My hands/fingers hurt, and I have an office job requiring me to type all day. I do take tramadol and gabapentin but are there any other suggestions especially for my hands.

Jump to this post

@lkristoff Welcome to Connect. Are you still in a recovery phase from spine surgery? Have you had any physical therapy? What does your doctor say about electric shocks? Has there been any testing or imaging to diagnose this?

REPLY

Many issues here give me reason to be grateful for my many problems. I'm so very sorry so many are suffering and am hopeful there will be a cure or at least decent treatment for the PN and other stuff.
February 3, 2023, I had what I was eventually diagnosed as a transverse myelopathy "attack" of some sort. The ONLY thing that could be blamed for these problems was a tiny blip in my spinal canal at C2-3. Initial problems were that I couldn't walk or stand, PN in both hands and feet, mild weakness of the left leg, numbness of the right side from toes to armpit, and severe leg spasms in both legs. Yes, kinda like the "electrical shocks" described by some. Lots of testing and trial-and-error with meds, finally came up with Baclofen for the longest lasting and most troublesome issue of the severe leg spasms. They do not happen as long as I regularly take this med. I also take pregabalin (Lyrica) and tramadol twice daily for fibromyalgia and other pain. The hands and feet neuropathy has not gotten worse so I just ignore it, but the numbness is increasing such that I can't feel the back of my left shoulder to the neck and sometimes can't feel my right arm on the pinkie side. The numb areas react to hot and cold as pain! Coming up on two years now, and the neurology specialist doesn't have any more answers than when we started, and just notes the new numb areas when she checks me for weakness. I hadn't related the balance issues to the myelopathy, but I will ask when I see the doctor next year. At that time she will likely repeat CTs and/or MRIs along with the continuing blood tests. I agree about the "golden years"; they feel pretty rusty to me! I hope maybe some of my story and/or medications that have brought me some relief will help someone here. Wishing all the best of luck - and Happy Thanksgiving.

REPLY
Please sign in or register to post a reply.