You have a Gleason nine, none of the other numbers matter the highest number is all that counts. That is very aggressive and you are really wasting time with the urologist The urologist is not a cancer specialist. They are urologist and surgeons. You want a lot more options than just surgery as you well know.
You probably want to get a decipher score, which can show how critical it is to get quick treatment since it gives you an idea of the risk of spreading and death.
Get the PSMA pet test and then go with the results to a center of excellence. Recently a list was posted of where to find them. Were you able to find that information? Maybe someone can post it again. There is a mayo clinic in Scottsdale, Arizona, that would be an excellent place to start if it’s not too far. If you go somewhere like that, you can get treatment much quicker than you’re getting it now. Knowing that you have a Gleason nine, with a quickly doubling PSA , they will definitely not hesitate to treat you quickly.
There are groups that help cancer patients get hotel rooms for free or very low cost. Do a search on the web and you will find out that information if it is necessary.
You should get a hereditary genetic test to see if you have anything in your genetics that can cause prostate cancer. Do you have a family history of cancer? If you go to Mayo clinic, they will have you get one.
To try to cut back on your cancer growing, you should cut out all red meat, eggs and milk. They tend to exacerbate prostate cancer. There are a lot of prostate cancer nutrition videos on YouTube. You might go check them out.
The information you get about the machine that you’re having your PSMA pet scan done is really not useful. The PSMA results are all that matters. Which chemical was used to do the scan is really not critical information either.
There are a lot more treatments than radiation and surgery. HIFU, cryotherapy and TULSA-PRO are just some of the other options.
Jeff, thanks you SO much for this reply. You’ve hit on exactly what I was thinking so it’s great to have a confirmation of that. I do plan on connecting with Mayo in Phoenix area as that is closest to me. Great new info to me on choices other than surgery or radiation. I’ll get studying for sure. Next Tuesday for the scan can’t come fast enough for me. Thanks again. Jay