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Epilepsy & Seizures | Last Active: 1 day ago | Replies (28)
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Replies to "Hi, @robertm1215. Welcome to Mayo Clinic Connect. I merged your question about nocturnal seizures and their..."
Hi Lisa,
Thanks for the response and for connecting some of us on this forum.
From what I can recall, the only thing the neurologist mentioned was that the change in time zones likely plays a role. He also increased the dosage of Keppra from 500mg to 1000 mg, twice daily. Since my son has had several seizures while on the medication, I had questioned whether the Keppra was doing anything to prevent the seizures, especially since there is little to no research that explains why Keppra seems to work for seizures. But he cautioned taking my son off of the medication, although opened it up to the possibility sometime down the road.
For the last seizure, we did administer Nayzilam which had been prescribed by his previous neurologist. This was the first time that we had witnessed a seizure and were able to use it since it had been prescribed. We brought a couple of doses with us given our previous experiences with travel, although we were hoping to not be in the position to use it. We can't be certain but it did seem to shorten the length of the seizure and limit the after-effects (since the last seizure (which was unobserved and likely lasted a few minutes) resulted in severe back pain for 1-2 weeks). He was out-of-it for most of the next day with some tingling in his hands and leg weakness but he was back to normal within 24 hours (although feeling down and frustrated). Thanks again!