1. < Colorectal Cancer

Where do I go from here-34 year old son diagnosed with rectal cancer.

Posted by myboysthree @myboysthree, 1 day ago

My son was just diagnosed with stage three rectal cancer from an Oncologist here in Iowa. As their treatment plans are limited I want to get him to Mayo sooner than later for a second opinion. However I am not sure he is ready to do that yet. I feel the ultimate decision is up to him but I fear the longer we wait the greater the risk of it spreading.
Any suggestions?

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roywalton | @roywalton | 1 day ago

Suggest you call Mayo as soon as you can because there may be a waiting. Of 3 to 4 months before you can't be seen

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cfairer | @cfairer | 1 day ago

I had stage 3B anal cancer at 40. I was treated at Roswell Park in Buffalo I had the Nigro protocol treatment. I’ve been well for 20 years. I beg you to get him treated right away. Mine had spread to my lymph nodes in the right and left side of my stomach. Your son can survive this!

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2 replies
Mentor
Laurie, Volunteer Mentor | @roch | 23 hours ago

@myboysthree

I would recommend your son starts the process to request an appointment at Mayo Rochester. If he decides to continue treatment in Iowa, that is OK, but at least if he contacts Mayo, he is starting process if he decides to seek a 2nd opinion. Often Mayo specialist can work with local providers to develop a treatment plan.

He can self-refer or ask his provider to refer him.
The process starts here: http://mayocl.in/1mtmR63

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1 reply
myboysthree | @myboysthree | 21 hours ago
In reply to @roch "@myboysthree I would recommend your son starts the process to request an appointment at Mayo Rochester...." + (show)
@roch

@myboysthree

I would recommend your son starts the process to request an appointment at Mayo Rochester. If he decides to continue treatment in Iowa, that is OK, but at least if he contacts Mayo, he is starting process if he decides to seek a 2nd opinion. Often Mayo specialist can work with local providers to develop a treatment plan.

He can self-refer or ask his provider to refer him.
The process starts here: http://mayocl.in/1mtmR63

Jump to this post

Thanks Laurie. Spoke with him earlier today and he has already filled out the appointment request. Just waiting to hear back from someone at Mayo.

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myboysthree | @myboysthree | 21 hours ago
In reply to @cfairer "I had stage 3B anal cancer at 40. I was treated at Roswell Park in Buffalo..." + (show)
@cfairer

I had stage 3B anal cancer at 40. I was treated at Roswell Park in Buffalo I had the Nigro protocol treatment. I’ve been well for 20 years. I beg you to get him treated right away. Mine had spread to my lymph nodes in the right and left side of my stomach. Your son can survive this!

Jump to this post

We are on it. Just received the diagnosis on Wednesday. He filled out the form to request an appointment at Mayo this morning. Keeping my fingers crossed that he can be seen sooner rather than later.
Thanks for your words of encouragement ❤️

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myboysthree | @myboysthree | 21 hours ago
In reply to @cfairer "I had stage 3B anal cancer at 40. I was treated at Roswell Park in Buffalo..." + (show)
@cfairer

I had stage 3B anal cancer at 40. I was treated at Roswell Park in Buffalo I had the Nigro protocol treatment. I’ve been well for 20 years. I beg you to get him treated right away. Mine had spread to my lymph nodes in the right and left side of my stomach. Your son can survive this!

Jump to this post

May I ask if you had to have an colostomy bag? He was told that he would have to which is his biggest fear. He is a Chiropractor and owns his own business and is struggling to understand what the impact will be on his life, especially at his young age 😢

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