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Anyone have hypoparathyroidism or non-working parathyroid glands?
Diabetes & Endocrine System | Last Active: Nov 22, 2024 | Replies (4)Comment receiving replies
I have hypothyroidism, discovered back in 2001 by my transplant doctor about a year after my lived transplant. I take Levothyroxine. I was diagnosed with osteoporosis in 2018 and my Endocrinologist also found parathyroid issues causing my bone issue. I had 1 thst was enlarged of the 4 parathyroid glands. I had it removed a few years ago and now take Calcitrol with some vitamin/mineral supplements. Plus I started Prolia shots every 6 months. So far my bone scans have improved and my calcium levels increased along with vitamin D.
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I also have no thyroid so take Synthroid.
Do you have any working Parathyroid glands? It sounds like you have 3 glands left after the enlarged one was removed. But you also said that you take Calcitriol which I read was to treat hyperparathyroidism. So it sounds like the removal of the enlarged gland didn't resolve the issue of high parathyroid hormone in your system.
Do you have any side effects from the Calcitriol?
I am looking for people with no working parathyroid glands for advice since my endo surgeon is concerned that may happen to me if I have the enlarged parathyroid removed. But if surgery is not an option, I will ask my Dr if Calcitriol might help.
Thanks.