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Having long COVID, how is your mental health?
Post-COVID Recovery & COVID-19 | Last Active: 6 hours ago | Replies (88)Comment receiving replies
It has been a long journey, I empathize with you and I’m sorry this has been terrible one for you. I too have never seen so many different doctors in these three years than I have in my whole life! Most of my doctors have seem to really care, want and try and help. Most won’t directly say “yes Covid caused what you are experiencing” (except my LC doctor) they will say things like “it’s not Impossible but there’s still so much we don’t know about the illness and the aftermath of it” and they are trying to see if it’s something other than LC causing my symptoms/illness.
It’s heartbreaking to hear your husband has trouble believing and understanding what you’re experiencing. He must notice a change in you. Maybe share some of the post on here, (there are hundreds probably thousands) read our stories and there are a lot of articles and videos on LC. Having support and someone believe you can help. The thousands maybe millions of people going through this we all can’t be making this up or it’s all in our heads. Someone on another thread posted this one.
I absolutely love what you said, be kind to ourselves and love on ourselves, do the best we can. And would I say these things to a love one suffering? Oh I really love that! I'm going to screen shot that portion of your comment and read it every day (maybe even multiple times a day)! Thank you!!!! Your post was inspiring!
Wishing nothing but happiness and a complete healing for you!
Replies to "It has been a long journey, I empathize with you and I’m sorry this has been..."
To mbryant1380:
Thank you for providing the link to the video by Dr. Sletten from the Mayo Pain Clinic. Dr. Sletten’s presentation is concise and well-organized. He speaks in a way that is articulate and engaging. He provides a framework that explains why we and our healthcare providers are so mystified by the symptoms we experience. And, why so many conventional approaches to treating those symptoms do not work.
Dr. Sletten also describes a new and different approach that has some success in treating our symptoms. He is realistic in describing the treatment as requiring time, effort, and patience on our part, and the coordinated use of different healthcare resources.
Dr. Sletten’s framework fits my experience of LC Post-Exertional Malaise (PEM). Also, the recommended “Pacing” approach to managing PEM, which works for me.
— Fred
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@mbryant1380
Thank you for the video and your encouraging words, I think this is so helpful day to day to know that I can still make a contribution to others when I most often feel useless and worthless as a result of all of the symptoms we go through. And thank you for the video, it was helpful and informative. Have you been to a pain rehab clinic like he talks about? If so, or if you know someone who has, was it helpful, did the benefits last, etc?
Wishing you peace and healing as well!