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@lilyann

hi joedeb, lilyann here, i am like becky, this sounds terrible and its so true how some health problem can turn on a dime, never thinking of the worst, always thinking the better and then hit with " wow, how fast something happens". so sorry about your wife, that's a hard pill to swallow to begin with and then in laws. you sound like a very special person and i am sure all of mayo followers would agree with me. you are the calvery. praying for all of you. stay strong .

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Replies to "hi joedeb, lilyann here, i am like becky, this sounds terrible and its so true how..."

Thanks. I get support too knowing others are doing this.

I guess I didn't express myself the way I wanted, Lilyann. I ahve witnessed the decline in the health of the caregiver and it can suddenly force big changes. As you say, caregiver health becomes more important to day to day activities. In my extended families situation, the caregivers health actually got worse than his spouse. If some advanced planning is not done ahead of time, things are tough for the family members. Example, my inlaws, didn't even have a list of the meds my sister*in-law was taking (advanced parkinsons). With the caregiver in the hospital and me trying to figure out what if anything to give my sister-in-law.
LBD is certainly humbling. You are constantly reminded you're not in charge. This morning, my lovely wife, started eating her breakfast with her fingers. At what point to you decide had she known, she would not want me to take her in public or to family gatherings to witness that?