← Return to Lance-Adams Syndrome aka Chronic Post Hypoxic Myoclonus
DiscussionLance-Adams Syndrome aka Chronic Post Hypoxic Myoclonus
Brain & Nervous System | Last Active: Jan 12 9:28pm | Replies (6)Comment receiving replies
Replies to "My 22 year old son was diagnosed with Lance Adam's syndrome in September 2024 after cardiac..."
I forgot to add: from what I’ve read and just hearing from those with LAS, a popular medication regimen for the treatment of LAS is depakote or keppra with clonazapam. Some have found help with fycompa. But with all medications it really is what works best for that individual.
Thank you for your reply. I hope your son is progressing well. I am unfamiliar with several of the medications your son is taking.
When looking for a provider try to make sure you find one that is knowledgeable in movement disorders and post hypoxic myoclonus. Our provider told us to use the scientific name rather than LAS. Also, if you haven’t found it already, there is a Facebook group for patients with LAS and their caregivers/family. Search for: Lance-Adams Syndrome. I believe there are several members from Florida. They may be able to better direct you to a provider specific to Florida. If you haven’t discovered this yet, a lot of people with LAS state that extreme weather (too hot/too cold) impact their tremors/balance etc. maybe something to watch out for come June/july/august.