1. < Neuropathy

Specific ALA Recommendations Needed

Posted by cecelia19 @cecelia19, 5 days ago

I’ve been taking ALA 600 mg since August after my PN exploded to the next stage. No neurologist I’ve seen, even at a major medical center will answer me
1) R form, S form, or combination (their answer is always it doesn’t matter, just make sure you take 600mg).
2) Brand
3) Does it matter if you take it with or without food?
4) Time of day
5) Is there any benefit to taking more than 600mg?

I take two 300mg (total 600mg) of a timed release “S” form but I will gladly change to anything that will be the most beneficial. As I understand it, ALA treats the underlying nerve condition rather than just mask the pain. My goal is to stop or slow the progression of my SFN. Since no neurologist has been able to give me answers to any one of these questions, does it truly not matter which one I use?

Interested in more discussions like this? Go to the Neuropathy Support Group.

deluga | @deluga | 1 day ago
In reply to @groverb24 "My neurologist recommended (1) 600 mg ALA per day... not sure if time of day is..." + (show)
@groverb24

My neurologist recommended (1) 600 mg ALA per day... not sure if time of day is important or with?without food. My symptoms are so severe in my feet Im not sure if I could feel any benefit. My best OTC product is CBD/THC cream to settle the nerve agitation. Hope this helps.

Jump to this post

I have had pheripheral neuropathy for over 30 years but it was diagnosed as gout. Around 4 years ago, after excrutiating pain, I was sent to a rheumatologist who after extensive testing said it wasn't gout and I had never had gout but I better see a neurologist ASAP.
The neurologist put me on Pure Encapsulations (PE) ALA and I take 600 mg 3 times a day. I had an amazing improvement - still numbness but no burning and awful pain. Then two months ago, the pain and burning came back and nothing seemed to help.

Then I realized the burning began when I swiched my multi-vitiamin (PE) Nutrient 950 with Vitamin K because it was out of stock everywhere to PE O.N.E Multivitamin. In going over my papers on neuropathy, there was an article that it was important to get enough B1 to help ALA and other supplements do their work. I checked the amount of B1 in each. My original one had 50 mg and the substitute only had 3 mgs. I immediately took (PE) B-Complex Plus which had 100 mg's in B1 and in 2 days the horrible pain and burning was gone and fortunately Nutrient PE 950 with K is now available again.

REPLY
2 replies
cecelia19 | @cecelia19 | 12 hours ago
In reply to @deluga "I have had pheripheral neuropathy for over 30 years but it was diagnosed as gout. Around..." + (show)
@deluga

I have had pheripheral neuropathy for over 30 years but it was diagnosed as gout. Around 4 years ago, after excrutiating pain, I was sent to a rheumatologist who after extensive testing said it wasn't gout and I had never had gout but I better see a neurologist ASAP.
The neurologist put me on Pure Encapsulations (PE) ALA and I take 600 mg 3 times a day. I had an amazing improvement - still numbness but no burning and awful pain. Then two months ago, the pain and burning came back and nothing seemed to help.

Then I realized the burning began when I swiched my multi-vitiamin (PE) Nutrient 950 with Vitamin K because it was out of stock everywhere to PE O.N.E Multivitamin. In going over my papers on neuropathy, there was an article that it was important to get enough B1 to help ALA and other supplements do their work. I checked the amount of B1 in each. My original one had 50 mg and the substitute only had 3 mgs. I immediately took (PE) B-Complex Plus which had 100 mg's in B1 and in 2 days the horrible pain and burning was gone and fortunately Nutrient PE 950 with K is now available again.

Jump to this post

This is so helpful - I can’t thank you enough. I hope I have the same results. This forum is invaluable in being a resource for others to share their successes. Do you have any reflux from that ALA?

REPLY
felicelinda | @felicelinda | 12 hours ago
In reply to @deluga "I have had pheripheral neuropathy for over 30 years but it was diagnosed as gout. Around..." + (show)
@deluga

I have had pheripheral neuropathy for over 30 years but it was diagnosed as gout. Around 4 years ago, after excrutiating pain, I was sent to a rheumatologist who after extensive testing said it wasn't gout and I had never had gout but I better see a neurologist ASAP.
The neurologist put me on Pure Encapsulations (PE) ALA and I take 600 mg 3 times a day. I had an amazing improvement - still numbness but no burning and awful pain. Then two months ago, the pain and burning came back and nothing seemed to help.

Then I realized the burning began when I swiched my multi-vitiamin (PE) Nutrient 950 with Vitamin K because it was out of stock everywhere to PE O.N.E Multivitamin. In going over my papers on neuropathy, there was an article that it was important to get enough B1 to help ALA and other supplements do their work. I checked the amount of B1 in each. My original one had 50 mg and the substitute only had 3 mgs. I immediately took (PE) B-Complex Plus which had 100 mg's in B1 and in 2 days the horrible pain and burning was gone and fortunately Nutrient PE 950 with K is now available again.

Jump to this post

Are the pills large and hard to swallow?

REPLY
deluga | @deluga | 8 hours ago

They're large but not hard to swallow.

REPLY
deluga | @deluga | 8 hours ago

I haven't had reflux but I try to take them with a meal.

REPLY
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