I, too, have been on this journey for 3.5 years with lots of referrals and, I don't know's from the medical professionals I have seen and treatments I have received. I am a licensed clinic social worker--a psychotherapist--and I have a hard time expressing my issues and an even harder time hearing, repeatedly, that they have no answers for me. I have been using intermittent FMLA since April 2021 and am now on short-term disability until at least the end of January 2025. Even my husband, who is also a therapist, doesn't believe that anything is wrong, that I am just being lazy because he cannot SEE my illness, the chronic and constant muscle and joint pain throughout my body, with the brain fog/cognitive dysfunction, and insane levels of fatigue. No one knows what to say, what to do or how to help. It helps reading and knowing that I am not alone in this, but it also depresses me that, after so much time, there continue to be insufficient answers for the thousands or millions of people suffering, just in this country. My words of wisdom seemingly fall short sometimes but here they are (what I can remember anyway LOL): hang in there, the world needs all of us and we learn and can grow in our suffering. Sometimes the best thing we can do is accept (not be okay with)--radically accept that this is the life we have been given each day. We do the best we can do each day with what we've got, love ourselves like we would love and care for others in the same situation. Listen to how you talk about yourselves and ask, "Would I say this to a dear friend who is suffering?" and if your answer is no, rethink those thoughts with gentle kindness. This takes practice and patience, I work on it each and every day and some days are better than others. Love yourselves, love each other, pray for peace and change...eventually it will come. DO NOT GIVE UP...