← Return to Anyone living with Raynaud's?

Discussion

Anyone living with Raynaud's?

Autoimmune Diseases | Last Active: 1 day ago | Replies (28)

Comment receiving replies
@stephaniebaird1

I've had severe and painful reactions to the cold since I was a kid. I suppose my family and I just thought I was "sensitive" in general and never really looked into treatment or testing. We joked that I was always "thin skinned".
Fast forward to when I was preparing for brain surgery at Mayo Clinic in 2018. I had a reaction during one of my tests. The room was cold and, after putting gel on my skin, the reaction startled the tech.
My reactions are a smidge different than what I'm seeing and hearing now -- the cold turns my skin bright red which is followed by hives and heat. It takes about 20 minutes for my skin to return to normal. And it can even be as simple as holding a can of soda on my arm. I've been told mine might be cold urticaria rather than Raynaulds. Oddly, no one else I know has this and definitely no one in my family.
Thoughts?

Jump to this post


Replies to "I've had severe and painful reactions to the cold since I was a kid. I suppose..."

I had cold urticaria starting at 13, and it morphed into Raynaud’s…my fingers turn waxy white within seconds of the temperature changing. The raised hives you’re having are def cold urticaria. Limit your caffeine, and invest in a heated scarf and slippers. I wear my heated scarf all the time…it helps me immensely. I wish I had better answers for you, it’s hard to just deal with when your hands and feet hurt a lot.