I was diagnosed in 2018. Having been born and raised in the south but moved north later in life, I can say that the south (Florida and southern Alabama) seemed to be harder on me than the north. This sounds crazy however the air conditioners that are on close to year-round in the south was far worse than just the winter up north. I would suffer even in grocery stores due to the AC. I tried many medications but found that the sildenafil was the only thing that helped me, I only take it when my hands are numb. I got a heated vest to wear as well as heated gloves. I did notice that coffee (or other caffeinated drinks) makes it worse as they restrict the vessels. Instead, I'll have hot cocoa or decaf tea. I carried a heating pad to work to help with the freezing temps in the office. I invested in a Bair Hugger on amazon at home. It doesn't sound like my case is as severe as yours however I hope some of this may be helpful and you find relief.

That is quite the array of drugs you have tried. My heart goes out to you. I also am living in the South and had Raynauld's along with other autoimmune diseases. My Raynauld's was never as severe as yours, however. I say had because it doesn't seem to be an issue and and I attributed it to one (or both) of two things. My husband wanted to help my health picture and started to make me fresh squeezed OJ (about a cup and a half) every morning with lots of pulp for me to drink thru the day. And also I upped (for other reasons) my Verapamil from 100mg ER to 200mg ER. That is when I noticed my Raynauld's was no longer an issue. Maybe it will help you, too. Best wishes.

Hi! Your Raynauds sounds really rough. Sorry that you had to have that amputation. I also have Raynauds, but not quite as severe as yours. Like the other replies, I agree with keeping your core warm and watching your caffiene if possible. Rest is also helpful for me. Take good care!