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Replies to "I have been an ITP patient since 2015, so it's been 9 years already. I don't..."
Autoimmune Diseases | Last Active: Jan 26 4:06pm | Replies (58)
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I have been an ITP patient since 2015, so it's been 9 years already. I don't know Rituxan, but my experience with immunosupressants hasn't been that good. I just spent a week at the hospital because my platelet count was so low, once again. This time I was treated at the ICU. So now I'm on Eltrombopag, and also on prednisone, at least while this episode gets managed :/
Replies to "I have been an ITP patient since 2015, so it's been 9 years already. I don't..."
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I'm so sorry you were back in the hospital. That is just miserable and expensive. Can I ask how low your platelets were for them to hospitalize you? The hospitalists will only discharge my daughter when she is over 20, and only if she's not bleeding. It's a vicious cycle right now of building up platelets only to be discharged and watch them plummet again.