Hi Judy
Welcome from this Judy:) (how DO they put the smiley faces on here?)
Your doctor is correct that they don't know much about this damn "thing" that so many of us have. I don't know if it's because all the research has been focused on cancer and no research money for anything else? But, that's another discussion.
I'm in my mid 80's and knew something very unpleasant was taking over my body when I was around 75. I never, to this day, have been given any tests to diagnose what I have. But, reading everything I could find told me that I had the big N! It looks like there are some ways to actually make a determination now....about time!

All I can tell you for almost 15 years of trying one thing after another for relief is that I still get really tough days. REALLY tough days! I decided long ago that this was something that I had and I had to figure out how to live with it and make the best of it." Judys" are strong, tough ladies! Somehow that goes with the name, my mother used to say.
Read everything you can find about Neuropathy. This Forum is the best place to start. See what makes sense in your case for what YOU are going through and remember to spend some time each day in stress management.