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Hi Judy
Welcome from this Judy:) (how DO they put the smiley faces on here?)
Your doctor is correct that they don't know much about this damn "thing" that so many of us have. I don't know if it's because all the research has been focused on cancer and no research money for anything else? But, that's another discussion.
I'm in my mid 80's and knew something very unpleasant was taking over my body when I was around 75. I never, to this day, have been given any tests to diagnose what I have. But, reading everything I could find told me that I had the big N! It looks like there are some ways to actually make a determination now....about time!
All I can tell you for almost 15 years of trying one thing after another for relief is that I still get really tough days. REALLY tough days! I decided long ago that this was something that I had and I had to figure out how to live with it and make the best of it." Judys" are strong, tough ladies! Somehow that goes with the name, my mother used to say.
Read everything you can find about Neuropathy. This Forum is the best place to start. See what makes sense in your case for what YOU are going through and remember to spend some time each day in stress management.
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Hi Judy,
Thank you for making me laugh, and yes, us Judy’s are strong!! I won’t give up! After much research and numerous trips to MUSC I am done there for now and moving on to try some natural methods. I have had all testing with EMG’s, labs and biopsies of my nerves to find out that my long nerves as well as my short fiber nerves are affected. The medications do not help. I feel gabapentin takes the edge off the pain but that’s it. I hear you about stress management as I grow very cranky with the pain. Thank God that He gave me a patient husband.
I feel your pain about your really bad days and pray they will get better. There are some days all I can eat is maybe crackers because the pain takes over . This forum has already given me hope and will try some of the suggestions such as magnesium, B vitamins and D. I start physical therapy the week after Thanksgiving and praying that will help as well.
Keep on pushing on Judy and thank you for reaching out.❤️