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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: Dec 17, 2024 | Replies (7075)

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@archie2

Hi--Heisenberg is an interesting name in science--the Heisenberg Uncertainty Principle-- the subject stays in a state of "possibility" until observed. Then the state is determined--sometimes called the "cat in the Box" experiment. Our lives are often similar--no reality until we experience relief or failure.
I just had a caudal injection that helped with overall leg pain a great deal. There are always modalities of treatment to give us hope. I have Dilaudid (Hydromorphone) in my pump. Morphine has a number of downsides as a primary pump drug, flushing, gastrointestinal distress and the formation of growths (granuloma) at the termination of the catheter the impede drug flow. I have had Dilaudid in my pump (Medtronic 40ml intrathecal) since 2007 and have been more than happy with it. Had a Flowonix Pump for 2 years but the performance and support were substandard. So happy when replaced. Also, the Medtronic pump restarts automatically after an MRI, which is a HUGE benefit, given our imaging needs.
One last serious thought. AA is a life-long sentence. I will never be out of pain again. I will never know a good night's sleep. I will never be completely comfortable at a party. I will never be able to stand online for meals or tickets. My sex life has changed. and yet, my core has not changed. My values remain in place. I love my wife and family and feel grateful for what changes they have made in their lives to accommodate my changes.
I am 80 years old next year--and yet still hopeful. I am not delusional, just focused on leveraging medical advances to improve quality of life. My pain management guy says the Boston Scientific SCS has lapped the field in performance. Heisenberg Principle right?? I'll never know until I experience the trial--open the box--as it were. I hope all of us who suffer daily from AA can take this ride together and share, learn, and grow through our community.

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Replies to "Hi--Heisenberg is an interesting name in science--the Heisenberg Uncertainty Principle-- the subject stays in a state..."

@archie2 Sounds like even though the pain pump has given you a little relief, not enough to really improve your quality of life? Can't imagine how you would be feeling without it.
I chose Heisenberg for the exact reason you stated. Life is, to a degree, very uncertain. Unless you have faith in the author of Life.
At one time anyone aged eighty would have been an "elderly geezer". Now, at age 77, not so much. How did we reach this point in our lives? Ha,ha! I just had a trial of the WaveWriter SCS by Boston Scientific. Did not go well due to scar tissue from previous scar tissue. I have asked my neurosurgeon to make my case to the insurance company for the permanent implant. Not likely to be approved, but if you don't ask...
Hope you can get the trial and some relief.

Heisenberg Uncertainty Principle. Not to be confused with the Hindenburg Certainty Principle: "With what's floatin' us, I'm certain we're headed for trouble in Lakehurst."