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Struggling with decision to move forward with Allogeneic Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 5 hours ago | Replies (39)Comment receiving replies
11/19/24
Mayo response:
Hi @sherbs
It is so tough to decide to move forward when you feel well. You might consider a second opinion. For me It helped to have second opinion because that made It feel more secure moving forward to BMT.
I decided to move forward with transplant, and am at Day +14 . And they are talking about discharging me soon, which is about 5-6 days earlier that we expected; so all went well with my Transplant. For me, the worst part was a lingering nausea but it is getting better and they do have a lot medicines to try. Everyone is different in this side effects they may get. Try not to spend too much time reading about all the potential side effects- I put all my GVHD info in one spot and planned to get it if I had GVHD symptoms.
Even after I made the decision to move forward, I was still anxious and feeling like this couldn't be happening to me. But once I was admitted I felt much less scared and anxious. My point being that it's ok to move forward when you feel anxious about moving forward. It's a very difficult decision to make.
Good luck with your decision.
Deb
Replies to "11/19/24 Mayo response: Hi @sherbs It is so tough to decide to move forward when you..."
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Thank you so much for your update! Day 14 (15 as I write this)! That's fantastic and just the fact that you are on the forum and communicating so soon after such an event alone is super encouraging!
In my case they are telling me a 4 to 6 week stay at the hospital so I'm surprised they are looking to discharge you so soon? I know different institutions do things differently but that must be a good sign. Super happy for you and sending positive thoughts!
I wake up every morning with that feeling - 'how could this be happening to me?'. I know it well!
I'm going to seek as many opinions as I can but it does seem inevitable that this is my path. And, if that's the case, better traveled sooner than later and having it always looming out there - at least that's my typical attitude.
-G